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Increasing Awareness, Care and Treatment for CAPS
and other autoinflammatory diseases.
  • Watch the archives of the NIH-WRNMMC 2nd Symposium on Autoinflammatory & Immunedysregulatory Diseases August 22, 2019 (Day 1)
  • And the second day of the symposium August 23, 2019 (Day 2)

  • Autoinflammatory Patient & Family Program LIvecast Watch the archive of the patient program, with talks by doctors that are experts for autoinflammatory diseases.

    "Grand Forks Woman Diagnosed as Being Allergic to the Cold (note: She actually has FCAS not Cold Urticaria)"

    http://networkedblogs.com/u6rZX?a=share "CAPS / Rare Disease Day 2012"

    "GENETIC CULPRIT OF RARE AUTOINFLAMMATORY DISORDER CONFIRMED-NOMID Alliance mentioned for some upcoming efforts to increase awareness about CANDLE syndrome"

    "Wood River Teen Pushes Recognition of Rare Diseases"

    "Eaton Girl to Appear on Cake Boss"

    "Britain's Bravest Brownie (about a girl with NOMID/CINCA)"

    "The Ultimate Targeted Therapy-interview with Karen Durrant, Dr Hal Hoffman, and patients. This article was a feature within the following Forbes article"

    "Tiny Markets Big Bucks-an article about targeted drugs for rare diseases, specifically CAPS"

    "UCSD Researchers Find Effective Treatment for Unusual Fever Syndrome Caused by Cold Temperature "

    "Spotlight on Rare Diseases"

    "Nine Years Old and a Life of Pain– a story about a child with MWS in Ireland"

    "Related article: Dundalk Democrat Unites two Families Affected by a Rare Syndrome"