Many patients with autoinflammatory diseases, or other rare diseases may feel that they are alone, but there are other people in the world that have these diseases, and communities online where they can connect with each other. We try to help patients to find the information that they need, specialists that can help them and other patients and families that can relate to them.
The Connect Links page include a growing list of online communities, patient groups and other helpful organizations. The Patient Resources page includes links to many helpful sites, such as: The National Patient Travel Center, information and directories for the NIH, The Children's Inn and much more.
The Photos page features various photos from patients, Autoinflammatory Alliance events, Rare Diseases Day, or other photos that show patients or our organization helping to increase awareness about autoinflammatory diseases. We hope that this photo area will inspire others, and give hope to others around the world that are suffering from autoinflammatory diseases.
We have some contact forms on our site. All contact information is secured and used only by the Autoinflammatory Alliance, and is not shared with any other organizations, institutions or individuals. We have a strict privacy policy and do not share any information or contacts without your request or permission. You can opt-out of our mailing list, or our contact list at any time. We have a mailing list form using MailChimp, and a contact form with FormTitan, which both are compliant with the GDPR and are secure. We also use Salesforce for nonprofits, with a GDPR complaint system with Form Titan and Mailchimp to securely manage contacts.
You can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Our website host does do basic analytics, but we do not track anyone, or use that data for anything.
