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Increasing Awareness, Care and Treatment for CAPS
and other autoinflammatory diseases.
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Visit our new blog at this link: http://saidsupport.org/action-advocacy for more details about our efforts and recent activities, such as Rare Disease Day 2014, advocacy and outreach to increase awareness






  • Rare Diseases Day
    Rare Disease is open to the general public, patient organizations, NGOs and the rare disease community at large. Rare Disease Day is an annual, awareness-raising event coordinated by EURORDIS at international level and National Alliances at national level.