• www.autoinflammatory-search.org Check out our new autoinflammatory disease digital database based on our comparative chart!
• Rare Connect
  
  Need a Genetic Test Panel for Autoinflammatory Diseases? Read Our saidsupport.org blog post and download genetic testing pdf to share with your doctor.
  
  504 Plans for Autoinflammatory Diseases Read Our saidsupport.org blog post and download our 504 plan guide as a pdf to share with your school.
  
  Find a Rheumatologist This is the American College of Rheumatology (ACR) Geographic Membership Directory that you can use to search for Adult or Pediatric Rheumatologists (in the US, or abroad), or other health Professionals that are members of the ACR. Search by specialty, and by city, state and/or country.
  
  Diagnostic Score for Periodic Fever First make sure to download the questionnaire form with the hyperlink in the top paragraph on this link, then do this diagnostic tool. (note apthosis is mouth sores, thoracic pain is pain in the chest).
  
  A new online information and social network for CAPS and other rare diseases. There is a community for CAPS, one for FMF and also Behçets, along with other diseases.
• http://www.amws-cinca.eu
  AMWS/CINCA is French CAPS patient group - Association pour l'aide aux personnes concernes par les maladies rares Muckle et Wells syndrome et CINCA.
• http://www.caps-family.com/
  Japanese CAPS patient association website-all information in Japanese.
• La Unidad de Enfermedades Autoinflamatorias
  La Unidad de Enfermedades Autoinflamatorias se crea en el 1998 en el seno del servicio de Inmunologi­a del Hospital Clínic de Barcelona, con una clara vocacion asistencial, investigadora y de docencia en la naciente Area de las enfermedades autoinflamatorias. Information in Spanish for many autoinflammatory diseases is being added to this site.
• Eurofever Project
  Information about autoinflammatory diseases in multiple languages for patients and doctors.
• CAPS Community
  An informative site sponsored by Regeneron about Cryopyrin-Associated Periodic Syndromes (CAPS), There are printable pdfs about CAPS on the site, and information for patients and medical professionals.
• Canadian CAPS Network
  Canadian CAPS Network patient association, affiliated with CORD (Canadian Organization for Rare Disorders).
• National Organization for Rare Disorders NORD (USA)
  Excellent Index of Diseases on a multitude of rare diseases, and resource for patients and various organizations dedicated to rare disorders.

For Medical professionals

• Eurofever Project Registry of Autoinflammatory Diseases
  This is a new registry-please contribute your cases to this registry so more can be learned about these rare diseases.
• Eurofever Project
  Multilingual information about rheumatologic diseases, including Autoinflammatory diseases. There are printable information pages about many of these diseases to give to patients:http://www.printo.it/pediatric-rheumatology/
• Club Rheumatismes et Inflammations
  A Professional Organization in France dedicated to various periodic fever syndromes, rheumatic diseases, and inflammatory disorders. Their image library of syndrome photos is very helpful, and we have a few of their photos credited and in use on our site in the NOMID/CINCA section.
• The INFEVERS registry
  Heriditary Autoinflammatory Disorders, Pyogenic Disorders, granulomatous Disorders, and more.
• ISSAID-International Society of Systemic Autoinflammatory Diseases
  The ISSAID society gathers resources designed specifically for autoinflammatory diseases to facilitate contacts between physicians, biologists and basic researchers dealing with these disorders.
• Paediatric Rheumatology European Society (PRES)
  PRES is a European scientific society for healthcare professionals in the field of paediatric rheumatology.
• CARRA: Childhood Arthritis and Rheumatology Research Alliance
  The Mission of the alliance [CARRA] is to prevent, treat and cure rheumatic diseases in children and adolescents through fostering, facilitating and conducting high quality research.
• ESID: European Society for Immunodeficiencies
  
• Le CeRéMAI Centre de reference des maladies auto-inflammatoires en France s
  The French Center of Reference for Autoinflammatory Disease This site is a resource for French patients and medical professionals.
• Orpha.net: NOMID/CINCA
  A nice summary about NOMID/CINCA syndrome, by Dr. Anne-Marie Prieur, the doctor that pioneered the research on this syndrome.
• Orpha.net: Muckle-Wells
  A summary of Muckle-Wells syndrome on orpha.net.
• Orpha.net: FCAS
  A summary of Familial Cold Autoinflammatory Syndrome on orpha.net.

Other Autoinflammatory Syndrome Sites

• FMF Community
  A site featuring many periodic fever diseases, including Familial Mediterranean Fever, FCAS, Muckle-Wells, NOMID, and many others.
• Stichting FMF-Community Nederland
  Stichting FMF-Community Nederland is an organization dedicated to helping patients autoinflammatory diseases.
• Association Française de la Fievre Mediterranienne Familiale et des autres Fievres Recurrentes Hereditaires dite AFFMF
  French FMF organization, with booklets in many languages (including English.) They have a wonderful children's storybook about FMF in multiple languages too.
• Hyper-IgD & Periodic Fever Syndrome (HIDS)
  A good site dealing with HIDS, and has a link to the HIDS patient's platform.
• he STAIR Consortium voluntary registry for patients with HIDS Consider joining this registry today!
  
• Amyloidosis
  Amyloidosis is the buildup of amyloid deposits in the body that can damage the liver and kidneys. Patients with MWS and NOMID are at risk for this condition. Other autoinflammatory diseases are also at risk.
• PFAPA Group
  
• International Still's Disease Foundation
  
• American Behçet's Disease Association
  
• Schnitzler Syndrome website
  This website contains information on Schnitzler syndrome for health professionals and scientists, references on Schnitzler syndrome, information for patients and links.